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희귀 난치병인 ‘조로증’을 겪었던 세계 최장수 생존자가 28세의 나이로 사망했다. 10일 이탈리아 선천성www.segye.com 2024-10-10희귀 유전 질환 ‘조로증’ 환자 중 최장 생존자로 알려진 새미 바소(Sammy Ba...www.donga.com 2024-10-10기대수명 13.5년에 불과한 희귀병 '조로증'의 생존자, 이탈리아 출신의 새미 바소가 28세 나이로 숨졌다. 로이...www.etnews.com 2024-10-11[[헤럴드경제=나은정 기자] 다큐멘터리 '새미의 여정'으로 이름을 알린 세계 최장수 조로증biz.heraldcorp.com 2024-10-10또 ㈜피알지에스앤텍 임상개발실 박수영박사는 한국 식품의약품안전처에 제출한 ‘제 2형 신경섬유종증 환자의 안전성과 ...www.viva100.com 2023-11-22소아조로증 재단에 따르면 미국 등 전 세계 51개국에 등록된 환자 수는 약 193명...www.viva100.com 2023-08-18
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